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김주현 ( Kim Joo-Hyun ) - 강원대학교 춘천캠퍼스 간호학과
박은영 ( Park Eun-Young ) - 가천대학교 간호학과
이하나 ( Lee Ha-Na ) - 동양대학교 간호학과
김현주 ( Kim Hyun-Ju ) - 우송정보대학교 간호과
유재분 ( Yoo Jae-Boone ) - 가천대학교 간호학과
최경혜 ( Choi Gyeong-Hye ) - 강원대학교 춘천캠퍼스 간호학과
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Abstract
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Purpose: The purpose of this study was to understand the lived experience of a main caregiver, in charge of a family member with a severe chronic disease.
Methods: The participants of this study were 13 main caregivers, who have a family member with a severe chronic disease. The data were analyzed through the phenomenological research method.
Results: This research concluded with: one core theme, five theme clusters and 13 themes. The one core theme was: `My Life is Not Mine.` The five theme clusters include: `The Dark Days Ahead, of What We Do,` `Serious Pressure,` `My Body is Broken (caregivers),` `Overcoming,` and finally `Endless, Long and Long tunnel.`
Conclusion: We must emphasize to a main caregiver of a chronic disease patient, to the fact that their life should be theirs, not the patients. In addition, we need to be attentive of their well-being, as well as the chronic disease Patients, and sensitively responsive to their problems.
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KeyWords
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Chronic disease, Caregivers, Qualitative research
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원문 및 링크아웃 정보
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등재저널 정보
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